Innovation in rare disease: How can Europe be a global leader?

With the occasion of the upcoming Rare Disease Day being commemorated at the end of February, join EU40, Biogen, EURORDIS, and Euronews on 15 February beginning at 15:00 CET for a virtual debate entitled “Innovation in Rare Disease: How Can Europe be a Global Leader?“.

In the European Union, a disease is considered rare if it affects fewer than five people in 10,000. This might sound small but in practice, six to eight per cent of the bloc’s population is affected by a distinct rare condition like this, which translates to between 27 and 36 million people.

Most of these patients suffer from even rarer diseases that affect just one person in 100,000 or more, according to EU data. Approximately 5,000-8,000 distinct rare diseases in the EU span all medical areas and include neurological, immunological, metabolic diseases, as well as rare cancers.


Sandra Gallina, Director General, DG SANTE – European Commission

Alessandra Moretti, Member of the European Parliament

– Dolors Montserrat, Member of the European Parliament

Nathalie Moll, Director General, EFPIA


Doddie Weir, Rugby Legend, ALS / MND Advocate

David Nestor, Head of Neuromuscular Diseases, Canada & Partner Markets, Biogen

Philippe Berta, MP & President of the Rare Disease group, French National Assembly

Alexander Natz, Secretary General, EUCOPE

– Moderator: Jeremy Wilks, Science Journalist, Euronews


More information and registration can be found by clicking here.

Keep an eye on this page for further updates!