Innovation in rare disease: How can Europe be a global leader?

With the occasion of the upcoming Rare Disease Day being commemorated at the end of February, join EU40, Biogen, EURORDIS, and Euronews on 15 February beginning at 15:00 CET for a virtual debate entitled “Innovation in Rare Disease: How Can Europe be a Global Leader?“.

In the European Union, a disease is considered rare if it affects fewer than five people in 10,000. This might sound small but in practice, six to eight per cent of the bloc’s population is affected by a distinct rare condition like this, which translates to between 27 and 36 million people.

Most of these patients suffer from even rarer diseases that affect just one person in 100,000 or more, according to EU data. Approximately 5,000-8,000 distinct rare diseases in the EU span all medical areas and include neurological, immunological, metabolic diseases, as well as rare cancers.

Guests joining the discussion include Alessandra Moretti, Member of the European Parliament; Yann Le Cam, CEO of EURORDIS, and Johanna Friedl-Naderer, president of Europe, Canada and partner markets at Biogen. The event will be moderated by Euronews science journalist Jeremy Wilks.

More information and registration can be found by clicking here.

Keep an eye on this page for further updates!