Unlocking innovation and access for rare disease patients in Europe

To mark the opening of Rare Disease week, you’re invited to join this high-level policy debate, that will address the future of European collaboration on rare diseases, to reimagine and transform rare disease policy through access, awareness, and innovation.

We will bring together the European rare disease community to tackle this area of great unmet medical need, gain insights on the impact that policy decisions have on improving early diagnosis and the quality of lives of people affected by rare diseases.

Join us for this virtual series of sessions to examine the most critical issues in rare disease in Europe from different perspectives including policy-makers, innovators, academia and industry, medical professionals and patient organisations, who are leading the conversation around the future of European collaboration on rare diseases.

With thanks from the organizers of this thought-provoking event, EU40 in collaboration with Biogen and Reuters Events.



Stella Kyriakides
European Commissioner for Health and Food Safety

Dolors Montserrat
Member of the European Parliament, Spain

Tomislav Sokol
Member of the European Parliament, Croatia

Yann Le Cam

Johanna Friedl-Naderer
President Europe, Canada & Partner Markets, Biogen

Bertalan Mesko
The Medical Futurist

Avril Daly
Retina International

Nathalie Moll
Director General

And many more…